As a 37-year survivor of a brain injury, Marvel Vena understands the unique issues that neurointensive care patients and their families endure. She is devoted to making positive changes for patients both locally and nationally, and as a volunteer at Rush she has touched the lives of thousands of patients and their families. Her devotion to helping others turn disability into possibility has earned her this year’s Eugene J-M.A. Thonar, PhD, Award.
“Marvel has embraced Dr. Thonar’s achievements in helping patients relish life differently,” says Barbara Klawans, who has worked closely with Vena through Rush’s Physical Medicine and Rehabilitation program. “They both display positive attitudes and push the boundaries as crusaders for patients with fundamental desires to transition from vulnerable to developing resilience in spite of their disabilities.”
Making sure ‘someone is there to help them’
At Rush, Vena was instrumental in the creation of the Family Information Group. Founded in 2002, the group meets with families of current neurointensive care unit patients every Wednesday afternoon. The purpose of the group is to provide necessary information needed to navigate through treatment and recovery.
By Dennis Gates, MD
I have been taking part in medical missions for more than 50 years. My first trip was as a medical student at Loyola University, when I worked as a laboratory technician for a couple of doctors in Brazil. That experience enlightened me to the far greater need for orthopedic and medical care in Brazil than in the U.S. A child in America with a club foot is going to get treatment somehow, whereas in Brazil, that’s not the case. There aren’t adequate medical facilities, and patients can’t afford treatment or simply don’t have access to care. Then, two years in the Peace Corps as a family doctor in Nigeria and Ghana reinforced to me the incredible medical needs of developing countries.
Once in orthopedic practice, some colleagues and I started making regular mission trips to Brazil. We’d go down to a little clinic on the Amazon River, called Esperanca, to perform many surgeries and train orthopedic residents. When we started in the mid-1970s, there was only one local orthopedist; by the time we stopped making the trips 30 years later, there were seven well-trained orthopedic surgeons in town. That was pretty satisfying.
By Jeffrey Soble, MD
Nearly two years ago, I decided to follow a vegan diet, or an almost vegan diet, anyway. As I tell my patients, the decision to embrace a plant-based diet is a very personal one. People choose it for a variety of reasons, and it’s just one of several ways to eat more healthfully. Just look at your priorities and do what’s right for you.
For me, a plant-based diet made sense. Here, I share how I made the transition and why.
Health, environment, animal welfare
Several factors in my life converged to convince me to go vegan.
Certainly, there were health reasons: I have a family history of heart disease, and my father died of a heart attack. Heart medications didn’t agree with me, so I took a more serious look at my diet. That thinking coincided with my evolving views of animal rights and a growing desire to do good things to help the planet. I had already started driving less and riding my bike more for health and environmental reasons. Helping to reduce our dependency on the meat industry seemed like another way to be a good world citizen: It can help conserve land, water and energy resources as well as prevent pollution.
By Justine Britten, Liz Page and Allison Wood
September is National Cholesterol Awareness Month, so it’s a great opportunity to educate yourself about the vital role cholesterol plays in your health.
Most people are aware that you want to have low LDL (“bad”) and high HDL (“good”) cholesterol. But there are a lot of misconceptions about what makes your LDL and HDL go up or down. Should you avoid egg yolks? Should you stick to low-fat foods, or is sugar the real culprit?
To help clear things up, we’ve compiled a list of tips that we, as dietitians, routinely share with our patients — especially those who are trying to improve their cholesterol numbers, or who have a family history of heart disease and want to reduce their own risk.
Shafiq Rab, MD
As medicine becomes more precise and individualized — and as technology makes collecting and dispensing data easier than ever — you may wonder about the safety of your personal health information.
The federal Health Insurance Portability and Accountability Act (HIPAA) requires protection of certain electronic data — such as any information that can identify you or that pertains to your physical or mental health, including treatments.
“But Rush goes beyond what’s HIPAA-mandated by protecting all of your health information against outside intrusion and inside breaches, including data that doesn’t contain your name or other identifiable information,” says Shafiq Rab, MD, MPH, senior vice president and chief information officer at Rush University Medical Center.
‘Moral and ethical duty’
Rush has the following safeguards in place to protect and defend your data:
- Thanks to encryption software, any would-be cyber-thief who tries to gain access to digital data would be unable to unscramble and use it.
- Privacy is a top priority of Rush employees. As part of their training, they learn to rigorously protect patient info by following several internal security guidelines.
- Rush is constantly checking the identity of authorized personnel to ensure that only people who need to know can see your patient health data.
- Rush hires outside security firms to test its computer system for weaknesses.
But what makes Rush stand out is a culturally embedded belief in the sanctity of patient health information. That belief is held by people across the organization — from doctors to nurses to patient registration specialists. “Patients come to Rush because they trust us with their health care,” Rab says. “It’s also our moral and ethical duty to take care of their health information.
Shafiq Rab, MD, MPH, is passionate about information technology because of its potential to improve people’s lives. He believes technological innovation is one of the best ways to enhance health care for individuals and society as a whole.
By Jennifer G. Goldman, MD, MS
Give light, and the darkness will disappear of itself. — Desiderius Erasmus
On May 18, 2017, a number of South American families living with Huntington’s disease had the chance of a lifetime: to hold an audience with Pope Francis I at the Vatican in Rome. This meeting was a collaborative effort between the medical communities in Venezuela, Colombia, and Argentina and the Huntington’s disease community worldwide to bring visibility to HD, reduce stigma, and offer a global stage for amazing individuals to share their stories and shine light on this debilitating condition.
Huntington’s disease is an inherited disease that causes certain nerve cells in the brain to degenerate or waste away. This degeneration causes uncontrolled movements, loss of mental capacities and emotional disturbance. According to the Huntington’s Disease Society of America, “Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s — simultaneously.”
People are born with the defective gene, but symptoms typically don’t appear until age 30 or older, often in the prime of a person’s life. The disease is passed from parent to child through a mutation in the normal gene, so if one of your parents has Huntington’s disease, you have a 50 percent chance of getting it.
After falling ill and urinating blood at age 16, Tim Guimon was diagnosed with IgA nephropathy — a kidney disease that causes inflammation and interferes with the kidney’s ability to filter waste from blood. He also learned that he was born with one kidney smaller than the other, and that these conditions could cause issues throughout his life.
“At that time, though, I didn’t have any major symptoms,” Tim says. “My doctor said I was doing fine, but warned me that it would probably progress as I got older. So for about 10 years, I kind of neglected to think about my kidneys.”
But when he was 26 years old, Tim’s wife, Kerstin, noticed that his legs were unusually swollen. Though he initially didn’t think it was a big deal, Kerstin and his mom, Sandy, encouraged him to see a doctor to determine if the swelling was related to his kidneys.