Raising Awareness About Myelodysplastic Syndromes

shammo-cancer-centerBy Jamile Shammo, MD

This year, the Myelodysplastic Syndromes Foundation will host its first MDS Awareness Run/Walk in Chicago, raising critical funds and awareness for myelodysplastic syndromes.

I am excited to share that I will be receiving the Nobility in Science Award at this year’s event, being held on June 22, from 8 a.m. to noon, at Maggie Daley Park. This community fundraising event helps the MDS Foundation in its mission to support and educate patients and health care providers with innovative research into the fields of MDS and related myeloid neoplasms.

As an MDS specialist, I have witnessed firsthand the impact this disease has on my patients’ quality of life and longevity. I strongly believe that we should support research endeavors to translate science into therapeutic advances that will ease the burden of this disease and prolong patients’ lives. I have participated in trials that resulted in approval of several agents for the treatment of MDS, but we need to work harder to identify additional treatments for MDS patients. I urge to join me to further this cause.

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Fair Trade: Kidney Donor Swap Strengthens Family Ties

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By Lisa Ballantine and Sebrenia Johnson

This is a shared story of a kidney donor and recipient told through the eyes of both participants who are related through the marriage of their children but were brought closer together because of a paired kidney exchange.  

Lisa

When I first met Sebrenia, I was impressed with this kind, godly yet fierce woman who was to be my son’s mother-in-law. I saw her ability for compassion and kindness toward others. We connected immediately, and she has since become a dear friend. In fact, we call each other sister-mom since there is no term for our relationship, and as we share our children now, and love each other as sisters, this seems fitting.

As I got to know Sebrenia, I learned that this amazing woman was being hindered by her lack of a functioning kidney.

Sebrenia

To manage my kidney disease for the past 13 years, every Tuesday, Thursday and Saturday for three hours and 15 minutes I needed dialysis treatment. I also had to incorporate a renal diet into my lifestyle, which included many food restrictions. As a dialysis patient I had to adhere to no potatoes, cheese, milk, chocolate, dark-green leafy vegetables, beans, cornbread, bananas, tomatoes, orange juice, colas, ice cream, peanuts or products with nuts.

These foods are high in potassium and phosphorus and could be detrimental to the heart and bones of a person with limited or no renal function.

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Beverly Huckman, Champion of Equal Opportunity

Beverly HuckmanBeverly Huckman, a champion for equality, affirmative action, diversity and inclusiveness who served for 38 years at Rush, died May 27 at her Chicago home. She was 77.

Huckman, who retired in 2012, was Rush’s associate vice president for equal opportunity and diversity.

“Beverly did some of the earliest work at Rush organizing our approach to diversity. She helped to found the ADA Task Force at Rush and did countless other things in support of equal rights for all. She touched many lives here and well beyond Rush,” said Larry Goodman, MD, the recently retired former CEO of Rush University Medical Center and the Rush University System for Health.

“Some people come into our lives for a season, but Beverly’s commitment to diversity, inclusiveness and equity has left a lasting impression on me and those of us who were blessed to know her,” says Terry Peterson, vice president of corporate and external affairs and chairperson of the Rush Diversity Leadership Council.

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Halting the Hepatitis C Epidemic

Vicki Shah, PA-CBy Vicki Shah, PA-C

Over the last 10 years, I have treated and helped cure more than 1,000 people with hepatitis C of all ages and backgrounds. It’s rewarding, to say the least, when my patients can move forward with one less health burden.

My patients usually struggle with the negative connotations of drug use associated with hepatitis, but this not the only way to contract hepatitis C. It can also be transmitted from blood transfusions, mother to child, or any blood-to-blood contact like needle sticks.

These patients are not alone. About 3.4 million people have hepatitis C in the U.S., and half of them don’t know they have the infection. Interestingly, three of every four people with hepatitis C are baby boomers, born between 1945 and 1965 and infected decades ago.

The main reason why a person might not know they have the infection is that they have not been screened for hepatitis C. Other reasons include that basic labs show normal liver enzymes and there can be no symptoms until there is progressive liver disease.

Cirrhosis can be the resulting condition of untreated hepatitis C, and it increases the risk of liver cancer, the need for a liver transplant and death.

Opioid-related surge

There is also a new surge of infected young people with the increase of opioid drug use. The blood-to-blood contact occurs with sharing of needles or other paraphernalia. Next door in Indiana, there was an outbreak of HIV with over 200 people infected, and 95 percent of those people also got hepatitis C.

The outbreak was devastating to the community because it included 3 generations of families — from preteens to grandmothers.

While we as a whole health community will continue to conquer the rise in opioid drug use, we can stop the epidemic of hepatitis C across the U.S. with awareness and treatment with a short duration of oral medications.

Vicki Shah, PA-C, is a physician assistant at the Rush University Medical Center Medical Center Hepatology Clinic.

Thank You for Saving My Dad’s Life

George Allington

George Allington

By Jason Allington

Rush saved my father from certain death and made a horrific situation not only tolerable, but inspiring.

I live in Oak Park. Over the holidays, my 76-year-old dad, George Allington, came to visit from South Carolina. On the evening of Dec. 29, we were watching TV together when he took a bathroom break. A few minutes later, he called in distress, because he’d passed a frightening amount of blood.

We called 911, and the paramedics rushed him to the Rush Oak Park Hospital emergency room.

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Telling Your Loved Ones You Have Cancer

IMG_6093By Deb Song

I can still remember the day I got the call from Dr. Andrea Madrigrano, my breast surgeon at Rush.

“Deb, I’m so sorry, but it’s not going to be what you want to hear,” she said. “The lumpectomy confirms it is DCIS. You have breast cancer. The good news is, we caught it early, but we recommend a bilateral mastectomy.”

I don’t remember much after that. I tried to stay calm and ask questions on next steps. I’m a doer. Instinctively, I just set out to get this treated. My “let’s do this!” attitude kicked in.

But suddenly I felt my heart racing faster, my breath shorter, and I could not hold back the tears any longer. I started to weep uncontrollably.

I blurted out, “Oh my God. How do I tell my mom? How am I going to tell my parents I have cancer?”

On this Mother’s Day, as I plan a day with my mom, I cannot help but think back to this moment when I was finally diagnosed and staged out for surgery. How do you tell your loved ones you have cancer?

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From a Winter Vortex to a Pollen Vortex?

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Payal Patel, MD, is a board-certified allergist at Rush South Loop.

By Payal Patel, MD

After surviving the polar vortex of 2019, many of us are just itching for some warm weather. But for allergy sufferers, could that itch be worse this year compared to the years past? Is this year truly the worst allergy season?

To answer that question, we must first take into account the climate pattern changes that are predicted to take place in our future. The National Oceanic and Atmospheric Administration and the Intergovernmental Panel on Climate Change are predicting a double to triple rise in the atmospheric carbon dioxide (CO2) levels within the next century. This rise in CO2 levels, in turn leads to changes in temperature and precipitation. Namely, Earth’s average temperature is expected to rise, as will the average global precipitation.

These global changes are the perfect setup for increasing pollen in the environment. This occurs by not only increasing the pollen production by some plants, but also by extending the pollen season.

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